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  • FIFTEEN YEAR REGISTRY REPORT - Parent Project Muscular Dystrophy
    About Duchenne and Becker Muscular Dystrophy Registrants Demographics Although two thirds of registrants in The Duchenne Registry live in the United States, the Registry has a diverse population from around the world with nearly 125 countries represented
  • Data Summary: Muscular Dystrophy | Muscular Dystrophy | CDC
    The tables below show data on males with Duchenne or Becker muscular dystrophy (DBMD) in 10 MD STAR net states or regions The information was collected during the years 1982-2015
  • Selected clinical and demographic factors and all-cause mortality among . . .
    Duchenne muscular dystrophy (DMD) is an X-linked neuromuscular disorder caused by mutations in the dystrophin gene It is the most common childhood-onset muscular dystrophy (MD) and, has a prevalence of 1 in 10,000 males aged 5-24 years [1] DMD has a median diagnosis age of five years in the United States [2] DMD is characterized by progressive skeletal and cardiac muscle weakness with a
  • Predictors of Death in Adults With Duchenne Muscular Dystrophy . . .
    Background-—Duchenne muscular dystrophy (DMD) is frequently complicated by development of a cardiomyopathy Despite significant medical advances provided to DMD patients over the past 2 decades, there remains a group of DMD patients who die prematurely The current study sought to identify a set of prognostic factors that portend a worse outcome among adult DMD patients
  • Life Expectancy in Duchenne Muscular Dystrophy
    The following search terms were used: (1) fi Duchenne muscular dystrophy or DMD; (2) survival or mortality or death or life expectancy; and (3) 1 and 2 The citations of a subset of the results, which represented systematic reviews and meta-analyses, were also reviewed for inclusion
  • Duchenne Muscular Dystrophy (DMD) - Rare Disease Advisor
    Duchenne muscular dystrophy (DMD) is a severe X-linked recessive neuromuscular disorder characterized by progressive muscle degeneration due to mutations in the dystrophin gene DMD affects approximately 1 in 3600 male births, and studies estimate a prevalence of 2 per 10,000 in the United States 1 Understanding life expectancy patterns in DMD is crucial to optimize treatment strategies, plan
  • Life Expectancy Increasing for DMD Patients, 40-year Analysis Finds
    In fact, the median life expectancy of males with DMD born in the late 1990s advanced to more than 28 years “This work highlights improvements in survival for patients with DMD over time, as standards of care have increased,” the investigators wrote The study, “ Life Expectancy in Duchenne Muscular Dystrophy: Reproduced Individual Patient Data Meta-analysis, ” was published in the
  • Selected clinical and demographic factors and all-cause mortality among . . .
    1 Introduction Duchenne muscular dystrophy (DMD) is an X-linked neuromuscular disorder caused by mutations in the dystrophin gene It is the most common childhood-onset muscular dystrophy (MD) and, has a prevalence of 1 in 10,000 males aged 5-24 years [1] DMD has a median diagnosis age of five years in the United States [2] DMD is characterized by progressive skeletal and cardiac muscle
  • Measuring Mortality in Duchenne Muscular Dystrophy
    Cardiovascular disease is a leading cause of death for patients with Duchenne muscular dystrophy (DMD), but age at mortality widely differs
  • Mortality Rates in DMD Vary by Race and Treatment Regimen
    The median estimated age of death in patients with Duchenne muscular dystrophy (DMD) is just under 24 years, with elevated mortality rates in non-Hispanic Black patients compared to non-Hispanic White patients, according to a study recently published in Neuromuscular Disorders Since 2004, the study
  • Selected clinical and demographic factors and all-cause mortality among . . .
    Introduction Duchenne muscular dystrophy (DMD) is an X-linked neuromuscular disorder caused by mutations in the dystrophin gene It is the most common childhood-onset muscular dystrophy (MD) and, has a prevalence of 1 in 10,000 males aged 5-24 years [1] DMD has a median diagnosis age of five years in the United States [2]
  • Life Expectancy, Survival Rates Improving Among Patients With DMD
    Life expectancy is improving among individuals with Duchenne muscular dystrophy (DMD), according to a meta-analysis published in Neurology Study results showed that patients with DMD born following 1990 had an increased median life expectancy of 28 1 years, compared with a combined cohort median life expectancy of 22 0 years





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